Bi -bi -xA patient with brain cancer, who says that he was prescribed for chemotherapy tablets for 16 years, although the leading principles of NHS say that they should be taken only within six months, said that he believes that his youth was stolen from him.
Jonathan Jones was diagnosed with anaplastic astrocytoma in 2007, when he was 17 years old, and he took Temo -Zolomide tablets until November 2023, when he was 33 years old.
Since he raised his case with lawyers, more than 30 other patients with brain cancer in university hospitals in Coventry and UHCW (UHCW) raised similar problems.
NHS Trust said he was committed to providing the most safe assistance and ordered an independent investigation.
Professor Jan Brown, an oncologist who watched the care of Mr. Jones, is investigated by the General Medical Council (GMC). Bi -Bi -x several times tried to contact a retired professor.
Mr. Jones, who is now 36 years old, said: “I lost freedom, I could not do anything at that time. I had 16, 17 years old, taking from me. “
The gardener -Lychfield, Staffordshire, said that he had problems with his teeth, problems with joint pain and problems with anxiety from the moment of diagnosis.
'If you do not continue, you will die'
Speaking of influence on his life, he said: “I have left [work] Every month for seven days, and I could not work, so financially this was a problem.
“The pain that I suffered at home … I would stay in bed, I would have a panic. Disease, fatigue. I didn’t go out a lot.
“This caused great stress for my family.”
Mr. Jones was told that he needed to stay on his tablets to stay alive, and when he questioned the treatment, he said that the answer was: “Do you want to die? If you do not take chemotherapy, you will die. ”
Manuals say that Temozolomide should be taken after radiation therapy Maximum six cyclesThe field is usually more than six months.
There is a wide range of side effects associated with Temolesolomide, including muscle weakness, memory problems and, in rare cases, secondary cancer and liver damage.
Another patient, Samantha Smith from Bromsgrow, Wostershire, says that she took Temozolomid for six and a half years, being led by Professor Brown in UHCW.
She said that she suffered from the destruction of teeth and gums, problems with mobility and chronic fatigue.
M -What Smith said: “You never expect someone to turn around and tell you”, by the way, you had too much. ”
“Now I am becoming much more lethargic. I can’t move as much as before … Now it’s hard to go down the stairs. I'm falling a lot. “
The Brabners Law Firm states that it has received data using requests for freedom of information that show that UHCW spent more than 3.6 million pounds on Temozolomide from 2009 to 2024 – more than 10 times more than that of comparative NHS hospitals.
In his statement, UHCW said: “Trust seeks to provide the most safe assistance.
“We comprehensively examined and talked with all the people who received Temozolomide (TMZ) at the end of 2023 to ensure the proper plans for support and care.”
He added: “A high-degree brain tumor is an extremely complex condition, and all methods of treatment-surgery, chemotherapy and radiation therapy are risk of complications and side effects.
“The leaderships of the National Institute of Health and Care recognize that clinicians can carry out a professional judgment corresponding to individual circumstances in the proposal of treatment for patients.
“We instructed the Royal College of doctors to conduct an independent overview of the representative cohort of patients who received more than 12 cycles of adjuvant TMZ in the period from 2017 to 2023.
“Since this process continues, it would be inappropriate to comment at this stage.”
The GMC statement says: “Dr. Jan Brown is currently registered with a practice license, but with intermediate conditions in its registration in anticipation of the completion of the GMC investigation.
“Intermediate restrictions were first imposed on the practice of Dr. Brown on August 23, 2024.”
